About 10 weeks ago, I started to seriously freak out. I was about 24-25 weeks into my pregnancy and my belly was growing. I could no longer use my stomach for my infusion set or my CGM sensor. I’ve had a pump since 1997 and I’ve only ever used my stomach for a site location so I was freaking out about where else I could put it. I experimented with my CGM on my love handle and it went miserably. I got sensor errors for days in a row, leading to several “change sensor” alerts.
After asking Twitter, Facebook groups, my endo, and my CDE, I finally decided to try my sensor on my upper butt. And I’ve had amazing success! My upper butt works great for my CGM sensor. Before, when my CGM was on my stomach, I would get faulty readings a lot. The first 24-36 hours read LOW constantly even if I wasn’t. It would take a while to finally calibrate correctly and by the time it did, it was almost time to replace the sensor again. When I use my butt, for some reason I haven’t noticed the first 24 hours being that far off. In fact, the readings are pretty spot on most of the time. When I gave my initial review of the CGM, I hated it. Now, I actually like it OK. I’m even able to get extra days out of the sensor. I think my record so far has been 12 days. I figured out that if I don’t tape it too much when I first put it in, I am able to disconnect it after the battery dies (usually around day 7) and then I disconnect it, charge it, reconnect it and I get another 3-5 days out of the sensor. I am so much happier now that I don’t have 1 out of every 6 days inaccurate. I have 10 pretty accurate days and I’m so much happier.
In terms of my infusion set, I still haven’t built up the courage to try anywhere too exciting. I’ve moved to my love handles and that seems to be working ok. My skin is getting very stretched out there though and I actually had one day where the cannula came out of my skin and I didn’t notice right away, resulting in high blood sugars for a few hours. My belly is huge now but it’s still growing so I’m not sure if in the next four weeks, I’ll have to finally try somewhere new, or if I can keep getting away with the love handles. I’m crossing my fingers the love handles will do because I am so scared to try somewhere new. It was easier for me to build the courage to try my upper butt with the CGM because it has an applicator so I just push the button. For the infusion set, I still just do a manual insert and I think it will be harder to put that in somewhere besides my stomach/love handles.
One thing to note though is that Medtronic didn’t get the FDA to approve the CGM sensor for anywhere but the stomach, so if you call them crying and upset like I did that you got 5 days of errors, they can’t help you. I think this is a bad customer service response because if they could just tell customers to try somewhere else, I think they would be amazed at how much happier their customers would be; I know I am about 1,000 times happier now that I’m using my butt than I ever was using my stomach. Maybe in the upcoming months/years they can get approval for areas on the body other than the stomach.