Yesterday, I had a doctor’s appointment with a new endocrinologist. I was very anxious about the visit because I really want to find a good endocrinologist before my hubby and I try to get pregnant. We moved to Richmond last August so I’ve been on the hunt for a doctor since then. I’ve had really bad luck with endocrinologists in the past so I don’t want to make the mistake of going to the same bad doctor (well bad fit for me) multiple times. I had decided to seek out a new doctor each time until I found “the one”. This isn’t a very easy process though because you can’t ask the receptionist questions about the doctor to avoid wasting time with a visit. I have tried to ask questions, but they aren’t very forthcoming with answers.
I went to a doctor back in January and while she was very sweet, she had made a few comments to me that slightly worried me. She seemed very educated about Type 2 diabetes but didn’t seem to have dealt with many if any Type 1 diabetics. She said that during her residency one, she helped one Type 1 diabetic through pregnancy. This statement worried me and while I liked her just fine, I wanted to seek out somebody that might have dealt with more than one Type 1 diabetic. So with a recommendation from a friend, I sought out this new endocrinologist and had my first appointment with her yesterday.
And I liked her a lot! She was very nice and friendly. She seemed very smart. She didn’t make any comments to me where I felt like she didn’t know or understand Type 1 diabetes. I discussed how my husband and I were looking to get pregnant soon and she seemed to really take that to heart and set me up with a diabetes educator to help me prepare. Granted, I did do most of the talking. I feel like with the help of the Diabetes Online Community (DOC), I know a lot more than in previous appointments and I went in there with a take charge attitude, questions ready and she did a great job listening to me and answering my questions. The only negative I really saw from the appointment was that we didn’t really look at my numbers too much. She asked me what areas I was having trouble with and I told her and she quickly reviewed my CGM data but didn’t really spend much time analyzing them. I’m not letting that bother me too much yet. We set up another appointment in 6 weeks so I’m taking yesterday’s appointment as a getting to know me appointment and maybe in 6 weeks we will go into more detail about my numbers. Also, my old endocrinologist in Northern VA would download my data for me from my pump at the appointment and knew how to read my CGM data reports. The doctor didn’t download or ask to download my data but that’s not necessarily indicative of her not knowing how to read my reports so I’m not giving up yet. My 6 week visit should hopefully confirm that I’ve found a good doctor or might make me realize I’m still on the search.
Yesterday’s appointment went well, a lot better than I expected. I’m looking forward to going back in 6 weeks. But if you noticed, I titled this post “Mixed Emotions” and that’s because along with the doctor’s appointment, I also got my blood work done. I wasn’t expecting to get my A1C results until next week because of the holiday weekend but I got an email this morning with them and my A1C is 7.3. 🙁
I am so bummed. I have been trying so hard recently. I’ve been watching what I eat, exercising, using my CGM, testing my blood sugar way more than I need to, changing my infusion set more often than in the past, carb counted, bolused aggressively for highs, lowered my alert threshold to 200 for a high versus 240 before. I’ve basal tested to exhaustion. I’ve done everything I could possibly think to do to get my A1C below seven and it’s sitting up there above the line at 7.3.
My husband and I were talking last night about what the number would be. He guessed it would be 6.8. I thought that was a pretty good guess. My average glucose result have been around 150 for my 7 day and 14 day. In the past it’s usually been between 180 and 230. I was all ready to celebrate my first time ever being under 7. Sure, 7.3 isn’t bad. But I’ve been 7.3 before. Heck, I’ve even gotten as low at 7.1. Last year when I was 7.3 and 7.1, I wasn’t trying nearly as hard as I’ve been recently. I don’t know what I was doing then to not have been trying hard but still be doing better than I have been now. Last August when I was 7.3, I had just come back from a 3 week trip to Europe and a 2 week trip in California where I was so busy having fun, I wasn’t thinking about my diabetes much at all. I also bought a house last August so July was spent stressing about finding a house-definitely far away from worrying about perfect blood sugars. My endocrinologist made a perfect statement to me yesterday. She said “I haven’t been bad, but I haven’t been perfect either”. Perfection is so hard to achieve with Type 1 Diabetes. She did write an encouraging letter to me when she gave me my results. And I was 7.6 back in January so maybe I’m still fighting to come down from that high back then. But that 6 months ago so I don’t really think that could be why I’m still higher.
I’m happy that I think I have found an endocrinologist that I might stick with but I’m so bummed and down that all my hard work hasn’t paid off. I’m not sure what else I could be doing to get below 7 but all I can do it keep trying and hopefully one day I will be able to celebrate.
At least I have fireworks to look forward to for tomorrow-Happy Independence Day to all my fellow American readers!