Back to my regularly scheduled Diabetes Blog Week post-Day 2-We, The Undersigned.
Recently various petitions have been circulating the Diabetes Online Community, so today let’s pretend to write our own. Tell us who you would write the petition to – a person, an organization, even an object (animate or inanimate) – get creative!! What are you trying to change and what have you experienced that makes you want this change?
I love this topic. I have had T1D for quite a while. I never even thought about trying to start a petition or trying to change anything related to my diabetes. I have spent my life just accepting that I have T1D and that I will forever be pricking my fingers, sticking needles in my belly for my infusion set and constantly worrying about getting too low or too high. I have complained about TSA’s invasiveness, gotten frustrated at my insurance company and been green with envy about Europe’s advances with T1D that for some reason the FDA thought was unacceptable. I’ve had visions of moving to Europe, but for some reason the thought of starting a petition never crossed my mind. I never knew any T1Ds and never thought my circle of friends would want to take the time to sign a petition for me. I have always just accepted my fate until I joined the DOC. Thanks to the DOC, I read and signed my first ever T1D petition, which was the petition to standardize TSA screenings for a diabetic person using wearable self-monitoring medical equipment. I was so excited when I saw this petition because it was like someone had read my mind. Since I haven’t really known many T1Ds, it was nice to be reminded how we all go through similar situations.
I love this topic but I also hate it. I hate it because there are so many petitions I would want to start that I can’t just pick one. I would love to petition the FDA to get advances in the US that are as advanced as Europe (although this is just my perception that Europe has better advances based on a few articles I have read-might not actually be the case). I would love to petition to Medtronic to offer a loyalty program. I have been using their products for 19 years-where is the discount loyalty program? I would love to petition to Congress to get more awareness to T1D. I feel like people talk about diabetes but it is always in the Type 2 scenario that I don’t even know if people realize there is another type of diabetes. I would petition insulin pump manufacturers to try to get more advancements with technology. I’m not actually sure what changes could be made to an insulin pump but hey people didn’t know they needed an automobile until Henry Ford came out with the concept. Seriously, I have been a pump user since 1997 and I don’t think it has changed at all, other than when I fill my reservoir it now asks me if I am sure I am disconnected and it asks if I see drops at the end of my tubing.
I could keep going. However, if I could only petition for one topic, to one organization it would be to my insurance company about my insurance rate. I came from the non-profit world where I had amazing health care coverage. I left that job last April to work for my husband’s small business. It’s just the two of us and trying to get health care coverage for me was difficult. Since it’s just a two person company, I wasn’t able to blend in as a spouse under my husband’s plan. I had to get my own insurance. When they found out that I was a T1D, my rates skyrocketed. Now I know that Obamacare is coming out (or is out) but I am not really educated on all it’s ins and outs. Maybe it will help me out or maybe not. I know that being a T1D is expensive. But my petition to my insurance company would be a petition to get a lower rate. Right now, I pay a very high rate per month to have insurance and then my deductible is high on top of that. I have totaled up my annual costs and they would be less total than what I pay my insurance company for the premium. Sure, I know that insurance is there for a worst case scenario and being a diabetic, I’m probably more likely to have something happen, but at the same time I also feel like I am healthier than most non-diabetics. I go to the doctor every 3 months for checkups. I know my cholesterol, vitamin D level, blood pressure, etc. Also because I am a T1D, I am much more aware of my health than most. I’ve started running and going to the gym and I eat fairly healthy to keep my blood sugar under control. My petition to my insurance company would be to not entirely ignore that I have T1D, but maybe to consider that I am a healthy T1D and my rate shouldn’t be as high as it is since I do take care of myself. There was nowhere on my insurance application to show my blood work results, nor did it ask for my weekly activities or vegetables consumed. I am a Type 1 Diabetic and I take care of myself. Why do I have to pay such a high monthly rate when I basically pay for everything myself with my high deductible.