I’ve had a lot of fun writing my blog and one of the most fun weeks was Diabetes Blog week back in May. I enjoyed writing the posts based on topics already assigned and I enjoyed reading everyone’s answers. When I participated this past May, it was the fourth year they have done this. I didn’t start my blog until last October so I missed the first three years. It might seem a little bit odd but this week I have designated as my Diabetes Blog week catch up week and I’ve chosen a few topics from the first three years to write about. Today, I am choosing a topic from 2012:
Today let’s borrow a topic from a #dsma chat held last September. The tweet asked “What is one thing you would tell someone that doesn’t have diabetes about living with diabetes?”. Let’s do a little advocating and post what we wish people knew about diabetes. Have more than one thing you wish people knew? Go ahead and tell us everything.
IT’S NOT EASY! The number one thing I would tell people is that life with diabetes is not easy. Sure, we (diabetics) might look happy on the outside and make it seem like our chronic illness is a piece of cake, but we are struggling every single day, often every hour of every day.
No, the infusion set injections, needles, finger pricks, CGM needles aren’t fun but that’s not why diabetes is so hard. Diabetes is hard because it never goes away. You can’t get a break from it. Every meal you have to think about it as you count carbs and bolus (put insulin in) for the carbs. Every time you exercise you have to worry about your blood sugar going too high or too low. Throughout a normal day you have to worry about an unexplained high-has the insulin gone bad, is it a bad infusion set site, did I forget to bolus, etc. Or you have to worry about an unexplained low-did I bolus too much for my meal, is it that time of the month, are my basal rates incorrect. Speaking of basal rates, that is something else you have to worry about. If your basal rates aren’t correct you could be consistently high or consistently low so you have to basal test periodically, which is fasting for about 8 hours to check your rates.
When you travel, it’s never an easy trip. You have to worry to make sure you aren’t forgetting any major supplies, like the time I forgot my reservoirs in Las Vegas. At the same time though you have to be careful not to overpack like the last trip I went on for two weeks, I was packing 12 CGM sensors and my husband asked how many I really needed for a two week trip (well actually I only need probably 3-4). When you go to sporting events like a football game, you have to debate if you need to take extra supplies with you, just like you have to worry when going on a trip an hour or so away. Football games also have the added bonus of having to worry about beer at the games. Will the beers make my blood sugar high or will they ultimately make my blood sugar go low. Speaking of alcohol, having diabetes is really tough when your coworkers want to go to happy hour ever Friday night and you have to worry about how much you drink and the consequences. Speaking of alcohol, college is a whole other topic about how tough it is to live with diabetes.
I have rambled on some but I don’t think many of my friends nor family know just how tough it is to live with diabetes. I haven’t even touched on the emotional side effects of having to deal with a bad blood sugar number or bad A1C result. Diabetes is tough. It’s an everyday battle that diabetics are dealing with. I put on a happy face most days and as a result, I don’t think people see how tough it is to live with diabetes everyday. But living with diabetes isn’t easy.
This blog has helped me to deal with diabetes, either by venting, sharing successes, or keeping tabs on things for me (like my running log). Thanks for reading and here’s to another 100 posts (hopefully)!